A Little Bit Sad, A Little Bit Happy


Hi,  Checking in again, and sorry I’ve  absent for a bit.

It’s been a long couple of weeks and it’s far from over. I’m not going to go into great detail,  Instead I’ll just list short descriptive items.  First of all, after my GP, I had to go to the neurologist. I was out of pills and it was overdue. She re-prescribed the pain meds and asked me if I had fainted since the emergency room and I had. I told her I fell forward out of my chair and was out until my head hit the floor hard. I was a little worried about it since it had been a couple of weeks or more and it was still swollen and hurt to brush my hair or touch it. She came over and pressed pretty firmly on the spot and made me holler Ouch! and then she called for a CT Scan of the brain and lumbar and an MRI after the monitor is off of the heart.  And so the day after Christmas I go to do that and see what’s going on in my head and  back.

The GP also prescribed therapy for the leg and foot which is handy by being in the same building as she is here on the Beach. I went two days ago and wasn’t thrilled but I knew I had to. It actually turned out ok since she thinks she  can get the swelling down in 7 treatments of one day after another and  mostly it will be wrapping each day. So that actually sounds good. I know when Home Health did that at first it felt good. So here’s hoping that it works and I can get back to the compression boot. As for the heart monitor, that is turning out crazy. The cardiologist had to be out-of-town for my last appointment to see him and they have to be done in three’s. 1) attach the heart monitor 2) in 30 days Terry takes it back so they can get the readings off of it and see what they show 3) go in a  few days after that to visit with the dr. about the findings. So I couldn’t walk on my leg that day and called to tell them so we could reset the appointments once again. A new person answered that I hadn’t spoken to before and I said I needed to reset and why…that I had other ailments that sometimes interfered. She got angry sounding and said, “No, we’re not resetting it and you will come in on the 15th to see the dr.” I let her know we hadn’t had the monitor on yet, so it  wasn’t supposed to be with him until all was done and he read the results. She said “You will keep this appointment anyway.” I said Okay…fine and that’s how we ended it. Should be a strange meeting with no results.   

I guess that is it…no more until the day after Christmas. Oh yes, I did forget to tell you about the bad couple of nights I had this week during all of this appointment setting. It really was getting to me and causing me to feel almost strangled with the stress as one appointment piggy-backed with the other. The GP called also for a sleep apnea overnight at my house testing while I sleep. I reminded her I don’t sleep anymore, only in “once in a while catnaps” during the day. She said that’s one thing they will see is why you can’t sleep. Sometimes you can get like a new baby home from the hospital who gets its nights and days turned around and its hard to fix, but it can be done. I didn’t like it at all and when I got home the phone rang and it was them wanting to set it up. I immediately hit the stress wall and started crying and told her it was just too much, too many specialists doing too many things to me too fast. She said did they tell you it was at your home so you could sleep more relaxed? I said yes, but you don’t understand, I don’t sleep! Only during the day off and on and not every day. She got quiet then and realized it wasn’t going to work and she said very nicely, “I will put this in your file and there is no pressure here. You call us when you are feeling better and think you might want to try it.” I thanked her and that was that. That night I sat up and cried all night and wasn’t sure why, but couldn’t stop. Release of pressure valves I guess. The next night I sat up at the computer working on my 3D models and would stop off and on and cut my hair off until morning when it wasn’t long anymore but short. I am not sure why I did that either but I’m struggling valiantly to get my sense of humor and positive outlook back on track. I feel a little better today but not too thrilled it will be next summer before my hair is long again like I prefer it. 🙂 I guess I could order one of those cheap dynel wigs.      😉

Okay, I’m signing off for now. Have faith in me, I’ll get back to a good place if they just back off and let me breathe a little. Wishing you and yours the best of Christmases in whatever way you celebrate. I’m going to close my eyes and listen to a little Christmas music online tonight and pretend I am seeing fluffy white snow instead of lights in palms and Santa in shorts.

Kath

HIP HIP HOORAY!!!


Any success is a good thing! And today, finally, my favorite most  revered GP in the land was back home and she told me a very special piece of news. I DO NOT have an infection. Hence I have had no fevers throughout the entire time. So the word of the day is lymphedema physical therapy to get rid of all that water and redness so I can get back to the cycling pressure boot. Also to improve our gait and balance when walking. And here is another shocker…(at least it was for me) she said I am carrying at least 25 lbs. of water between both legs (Mostly in the right leg) which will go quickly now due to her quad-druppling the Lasix and Potassium that goes with it. I will be so light I’ll float like a feather. I was wondering if this was such a neat thing last night as I made (it seemed like) 100 hurried trips to the little girl’s room. And it’s working today too which should be interestng since at noon I have my appointment at the cardiologist’s to get my heart monitor installed. Do they install heart monitors like software? And if so, what happens if you freeze up and they get the blue screen of death???? Okay, that’s enough of that. I will return and regale you with tales of installations and 404 Not Founds!

Kath

The NEUROLOGIST AND I


That title sounds a bit on the promiscuous side…whatever that means.   Back to business. My visit to the neurologist brought a back exam that ended in another MRI since the pain in the lower back (original herniated disks from accident) and mid back (injuries) were still causing pain after 13 years. No surprise there. Then she asked me if I had fallen again and if so, when? Yes, 2-3 weeks ago. Any injuries? Yes, I fell hard on my head and it still hurts to even lightly brush my hair. Let’s see that  Ouch!  (I told you it still hurt. Told her too but…)  I don’t like that, let’s do a CT scan on the brain. And a CT scan on the back. After that the MRI on the back. She could decorate her office walls from stem to stern with my films.

When I showed her my swollen red leg and foot, it brought ooo’s and ahhh’s. A change is always like a cold fresh breeze and no matter how interesting the back is, in the course of 2 years, it becomes  a trifle boring and is beat out every time by a bump on the noggin and a leg and foot red as fire and big as a Super Tanker in the Gulf sun. They are way up there over a boring back. But Dang! Two other doctors are following those! OH, OH, OH… I shout like Horshack on the “Welcome Back Kotter’ show, I have to have a heart monitor since my blood pressure was dropping like a stone and causing me to faint like the head fall which we already wore that subject out and another recent one that caused the night in the hospital where I was tortured. We won’t revisit that one either.

On the momentous crash, I was practicing for the Indy 250 of motorized chairs around the kitchen island when the unexpected faint took place. When I awoke (which plowing your face into the front of the fridge will do every time) I had to turn the feebly putt-putting of the chair off and feel my cheek to find a really nice facsimile of the nubbly texture on the fridge door. Feeling very sick to my stomach and dizzy, resulted in calling Terry, my ride extraordinaire,  and we  headed out to Bay Medical where I got right in to a room since it might be heart (unlike swollen red diabetic legs..not so much).

That was the afternoon matinee yesterday. Tomorrow we have to head out when the local NAVY Base strikes up the National Anthem at 8AM. I thought those cute little Navy boys had to get up earlier than that! My GP who is back will be my Doc of choice tomorrow to see if my leg and foot (which look suspiciously like they did last Friday) look like we need to switch meds like Helen Van Elsen. Tune in then for a new report! Signing off…Kath    

Appointment with the PA


I had my appointment early and I showed her all and went over all that had happened so far including my good friends who want me to head to Mayo. She didn’t comment on that of course, she can’t advise me  although my GP can on Thursday if she wants. In the meantime, I have instructions to tighten up my diet even though it’s  hard right now with the holidays upon us. I am to keep the leg elevated, moist heat, and keep taking the Cipro until its gone which should be Thursday when my GP is back and I have my appt. with her. They gave me a HUGE shot of Rocephin in the hip and made me sit 20 min. to make sure that I wasn’t going to have a reaction from it since it was large. (took forever to get in me)

Set up a series of visits with a physical therapist who works with lymphadema patients and she will do some therapy on me to dimish the water in my right leg and foot which will help the infection  to diminish and the antibiotics to work better. I imagine Thurs. will  bring more decisions.  She termed my cellulitis as moderate in severity, and from that I have determined I never want to have it severe. Any more and my foot and leg would explode all over her. ;-0   I am to call for a fever or more pain, redness and/or swelling. So we’ll see how this big shot does and I will let you know how things are going. Thanks for being there!

Kath

Boy, It’s Dusty Around Here!


Hi again, I have to admit I’ve more or less been through Hell and back lately, The operable word there is back. But…I’m headed for a fight. I have developed cellulitis and it is spreading like an Unzer on  a racetrack. We ended up at the Emergency room at the hospital after we had a 5 HOUR WAIT! And why was I there?? I had called my diabetes specialist from when they opened at 9 AM and another at mid morning and left two messages since they were obviously goofing off and not attending to the business of doctoring. I also left explicit descriptions of what was happening to me and said I needed antibiotics…STAT! And spent the entire day waiting on them to call me or the pharmacy with no results. The day ended with their answering service telling everyone to go to the emergency room if it was an emergency or if it was anything else to call back during regular office hours. EXCUSE ME!!!        But hadn’t I been doing that all day???

Isn’t there a hippocratic oath in there some where??  Doesn’t that word look suspiciously like it has a close relationship with hypocracy?   Well I can’t bash them all, I have known some jewels and I happen to think that the sun rises and sets in my GP. She is awesome and I trust her with my life. And that’s why a HELP call went out to her. She is out of pocket until my reg. appointment with her on Thursday but the PA will take me Monday morning at 9:30 so that helps. The hospital gave me a few 5oo mg Cipro tabs to start on so I am doing that with a prayer that it  makes a start on killing this infection.

There have been so many friends and relatives emailing me and asking how I am that I can’t possibly keep up, especially since I have been down a lot. So resurrecting the blog seemed the best thing to do. Thank you all so much for caring. I also discovered when checking in again that there are a lot of other people subbed and reading too and that is terrific! Join in you quiet ones, this is a great group to belong to. Check back often for updates, I will definitely keep you informed.

Kath…


Home from the hills, the rolling hills of white sand dunes that is. ♫  ♪ ♫”Over the water and through the dunes to the Doctor’s house we go.” ,   ♫“The truck knows

Does this method of administering insulin seem a bit strange??

Does this method of administering insulin seem a bit strange??

the way, She shouts an ‘OLE!!!’ and does her impersonation of Charrrro….”Tceeeeeeee-yow!!  Chitty-Chitty Bang Bang—Aiiiiii  yiiiii…” ♪  ♫

Today was “I” day. And for you who know not what “I” Day is, It’s Insulin day! The day when we all dump what’s left of our saline out in the parking lot flower beds and fill our reservoirs with Pure sparkley drops of insulin, jab the big needle into our tummys and set that cannula. Then we are plugged in and ready to go. I have to call her within 24 hrs. (by 8:30 tomorrow morning) and let  her know I am still alive and kicking and read her my numbers and times. For the first few days she wants me to take readings 10 times during the night and day. What’s that…Uh, Before meals and two hours after is 6 so that means 4 times during the night. With my sleep and pain problems that means no sleep for 4 days. Yep. That’s do-able. Sure… And Terry usually has to help me because those non-functioning numb hands look like they are massaging something and getting nowhere. How that is going to play out during the night and when he is at work is anyone’s guess. And yes, feel free to guess if you want. I will check in periodically and let you know how I’m doing with the  cannula in me delivering what I need to survive, the numb hands and the most perplexing thing of all, the numb head. That one wouldn’t surprise Dad however. 😀 Oka y, time to check the blood. Over and out. Kath

Addendum:

Well, the numb hands are wo rse (right one swelling) and now the right side of my head wanted to get in on the fun and it is numb. Right arm and hand are now swollen. The neurologist has set a brain MRI for Wednesday to see what it shows. If nothing we will chase down the nerve endings that are involved.  Some days it’s a little harder to get to the humor. Wednesday – brain scan Thursday – diabetes appt. (pump is doing well and seems to be keeping the numbers lower.)

Sleepy in the South


What time is it? What day is it? Where do  live???

I am sorry to admit that I slept the morning away! I was so  tired last night after grabbing a bite to eat I just went to the recliner, eased myself into it and promptly found myself in dream land. I won’t bore or thrill you with my dreams (at least not this time) and I awoke a few times and dropped back to the streets of Chicago and my partner, Mickey Spillane. Ooops, almost gave that one away!

To the matter at hand… the neurologist was happy i gave myself a little stroke test each time something went numb, but unhappy with the head numbness over the hand numbness it seemed. She aksi wasn’t thrilled with the spasms. I had forgotten those, but Terry kindly reminded me and told her about them. If I have neglected to inform you, I am sorry, I really thought I had. 😦 It consists of an arm or leg taking off in a huge spasm and slamming down on the desk or the floor and hitting it hard. It hurts like fire and I holler. End of story. Can’t tell when one is coming but they sure can wreak havoc.

Bottom line, off to a brain MRI on the 15th and an appt again for the results on Feb 5th.  I will definiely keep you all finom